Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.

Remember to play after every storm.

I choose to live until death, not spend the time dying until death occurs.

I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?'

There can be many different views of what Heaven is like, because Heaven is whatever makes each person eternally and fully happy.

I do fear death. But what I actually fear is not dying. I mean, true, it will be sad. But I know that there is a better place waiting for me.

I want to be remembered as a poet, a peacemaker, and a philosopher who played.