Sometimes my body wakes me up and says 'Hey, you haven't had pain in a while. How about pain?' And sometimes I can't breathe, and that's hard to live with. But I still celebrate life and don't give up.

The doctor said, 'He can't last a week.' And I did. And they said, 'There's no way this kid's going to last a month.' And I did. And so they said, 'Two years. He's not going to make it.' Two years. 'Five years. He can't do that.' I lived to be five years. 'He's never going to hit double digits.' And here I am, a new teenager.

I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?'

Even though the future seems far away, it is actually beginning right now.

I have a song deep in my heart, And only I can hear it. If I close my eyes and sit very still ...It is so easy to listen to my song. When my eyes are open and I am so Busy and moving and busy, If I take time and listen very hard, I can still hear my Heartsong. It makes me feel happy. Happier than ever. Happier than everywhere And everything and everyone In the whole wide world. Happy like thinking about Going to Heaven when I die. My Heartsong sounds like this: I love you! I love you! How happy you can be! How happy you can make this whole World be.

Sunset is still my favorite color, and rainbow is second.

While we are living in the present, we must celebrate life every day, knowing that we are becoming history with every work, every action, every deed.