I discovered that I was part of a Parkinson's community with similar experiences and similar questions that I'd been dealing with alone.

I didn't just want to be a poster boy and sign on to publicize somebody else's method of operations. If I was going to put myself out there, I wanted to make sure that it was to an end. So I got involved with this congressional hearing about Parkinson's being underfunded.

As with any turning point or instance when a new road is chosen and an old one forsaken, there are consequences.

My natural state is one that's affected by the shortage of dopamine production in my brain. So my natural state is to be halting and at times tremulous and kind of just physically disturbed. I mean, that's my natural state, given the situation in my brain. But I'm always as happy either way. And so when it comes to me, body language lies.

I take the medication for myself so I can transact, not for anyone else. But I am aware that it is empowering for people to see what I do and, for the most part, people in the Parkinson's community are just really happy that Parkinson's is getting mentioned, and not in a pitying way.

The way I look at life, and the way I look at the reality of Parkinson's, is that sometimes it's frustrating and sometimes it's funny. I need to look at it that way, and I think other people will look at it that way.

I don't look at myself as a leader. I do look at myself as part of a community.