My life is not easy, but it's awesome.

Many ALS patients end up fading away quietly and dying. For me, this was not OK. I did not want to fade away quietly.

Life is difficult. Not just for me or other ALS patients. Life is difficult for everyone. Finding ways to make life meaningful and purposeful and rewarding, doing the activities that you love and spending time with the people that you love - I think that's the meaning of this human experience.

Does anyone know if Lamborghini makes wheelchair vehicles? If not, I want to change that.

Because ALS is underfunded, patients have had no option but to fade away and die. That is not OK.

I look at the human life like an experiment. Every new moment, every new experience, tragic or otherwise, is an opportunity to gain a more accurate perspective and helps lead me to clarity.

I have moments where I miss my old self. But I think anyone can get caught up in what we used to have. But at the same time, we can choose to focus on the beauty of now.