My contention is that as long as you have other faculties-the emotional, psychological, intuitive faculties-you haven't lost yourself or even diminished yourself. Don't be ashamed when you're physically limited or dysfunctional; don't think that you're any less because of your condition. In fact, I feel I am even more myself than I was before I got this illness because I have been able to transcend many of the psychological and emotional limitations I had before I developed ALS.

After you have wept and grieved for your physical losses, cherish the functions and the life you have left.

Everyone knows they're going to die, but nobody believes it.

Everyone knows they're going to die, but nobody believes it. If we did we would do things differently. Do what the Buddhists do. Every day, have a little bird on your shoulder that asks, "Is today the day? Am I ready? Am I doing all I need to do? Am I being the person I want to be?

There is no formula to relationships. They have to be negotiated in loving ways, with room for both parties, what they want and what they need, what they can do and what their life is like. In business, people negotiate to win. They negotiate to get what they want. Maybe you’re too used to that. Love is different. Love is when you are as concerned about someone else’s situation as you are about your own.

Grieve and mourn for yourself not once or twice, but again and again.

Keep your heart open for as long as you can, as wide as you can, for others and especially for yourself.