Life is difficult. Not just for me or other ALS patients. Life is difficult for everyone. Finding ways to make life meaningful and purposeful and rewarding, doing the activities that you love and spending time with the people that you love - I think that's the meaning of this human experience.
Steve GleasonMany ALS patients end up fading away quietly and dying. For me, this was not OK. I did not want to fade away quietly.
Steve GleasonA terminal diagnosis can really mess with your head. Honestly, it makes you want to run away to the moon. Many ALS patients want to fade away quietly. This was not for me.
Steve Gleason